Monday
Friends Playing
Sunday
Links
I tried to add blog links: Lupus Foundation of America = www.lupus.org & Lupus Foundation of Colorado = www.lupuscolorado.org. I don't think I was sucessful b/c I don't see if on the side. But I have posted it here...as helpful LINKS!!
wireless
My whacked family...& the cell phone world...why are we so dependent on wireless? Everything is wireless these days...people can get a hold of you, basically in your sleep. So my husband & I are going to invest in buying new cell phones, yet again. How many does this make it? Too many. We had the feature of getting personal email, text, etc...put on our [so-called] phones. So we took the deep plunge. As if my family didn't get to find me as it is already...they reach me by text, im, email, cell or by phone...My daughter desperately wants a razor, so I will give her mine, as soon as I receive my new phone. She is already on a rampage to get my phone painted [lime green]. Yes, lovely, huh? She was never one to be just Ms. Plain [which is great, b/c she is little Miss Independent].
Tonight my family is planning on going over to my sister-in-law's place to have korean bbq. Yes, another evening at that place...well of course, I didn't go last night...& they ended up coming home early and blaming me [b/c I didn't go, said I wanted to sleep]. Everything is my fault, b/c I didn't drag myself over to be Ms. Grump! Hahaha!
I tried to get a hold of my fellow Lupus sufferer, but I have yet to get a hold of her. I hope she is okay. She is usually online 24/7, but I haven't seen her online lately.
So my husband kind of looked over and saw that I blogging about our "family" & he said...I live with lupus...b/c of me. [Rebar] But so true. Even my daughter said the same thing. I guess b/c they ALL have to live with me. I <3 my [immediate] family. They make me laugh for no [apparent] reason.
Tonight my family is planning on going over to my sister-in-law's place to have korean bbq. Yes, another evening at that place...well of course, I didn't go last night...& they ended up coming home early and blaming me [b/c I didn't go, said I wanted to sleep]. Everything is my fault, b/c I didn't drag myself over to be Ms. Grump! Hahaha!
I tried to get a hold of my fellow Lupus sufferer, but I have yet to get a hold of her. I hope she is okay. She is usually online 24/7, but I haven't seen her online lately.
So my husband kind of looked over and saw that I blogging about our "family" & he said...I live with lupus...b/c of me. [Rebar] But so true. Even my daughter said the same thing. I guess b/c they ALL have to live with me. I <3 my [immediate] family. They make me laugh for no [apparent] reason.
Depressed?
I have yet to leave my comfortable surroundings of my bedroom. Am I depressed? Maybe. I thought that I have come out of the depression "mode", but maybe I am slipping back into that [ugly] so called world. I have been trying to be optimistic, but after a while...it is hard to stay optimistic. Diagnosis after diagnosis...can there be anything more that they can find on their way to make me comfortable? Probably. I'm tried of hearing the words "complicated", "complex", "unsure", etc. In reality, I see at least one doctor every week. Some weeks I see two or three...lucky, huh? I would say it...you would think they would know what to do with me by now, but they don't. I have a Nephrologist, Rheumatologist, Internist, Opthamalogist...etc...therapist...psychiatrist...I recently stopped my therapy appointments. I had such a hard time getting to those appointments. I have been seeing a therapist every week [at least once a week or more] since 2004. I have been told that they would [in their opinion] hospitalize me. Of course in a psychiatric hospital. I have told them that if they decided [in my best interests] to put me in a place...they would have to deal with the ramnifications of me being separated from my family. I would be CRAZY if I was separated from my family. All the times that I have been hospitalized, my family had to live, sleep & breathe hospital until I went home. Was that selfish of me? Yes, of course. I don't go anywhere...without my husband or my daughter [my two constant people in my life] that keeps me sane. It's funny but the last time I went to Paris...I had to bring a dirty shirt of my husband...because of the smell [yes, I am strange]. My husband & daughter have a distinct smell on them...one thing my daughter could never do...was try to surprise me, because I can smell her a mile away. I might have lost one sensory, but my smelling one...has increased [by far] amazingly.
Stubborn me!
Thank goodness it is a new day! Yesterday, well, as we all can tell, it was not a good day for me. I'm glad it's nice out & everything!! My husband & daughter has taken my two labs [my babies] for a walk down to the local coffee shop. I decided to stay home & bum around [again]. I can't believe it will be Monday tomorrow!! My weekend just flew right by me...
My mother just called to check in [again]. Of course, bringing up the european trip [again], trying to tell me what to do [again]. How old am I? I think I have earned my own responsibility here...& yet I am doomed to being treated as a child. I have told her, yet again, if she deems that she can do better, then do it yourself! Mind you, this is all over airport transfers, & I hung up. That's the last thing I need!
I have this odd feeling, as if I was talking in my sleep again. I want to call my girlfriend to see if I talked to her or not last night...I have a tendency to sleep walk, talk, or whatever you might call it...I just talk with a slight slur. It is pretty scary. I have done strange things...like bid on ebay...exchange money...online banking...take off my clothes...I assume it is because my body is so tired, but my mind is still racing around...trying to get things done...
My mother just called to check in [again]. Of course, bringing up the european trip [again], trying to tell me what to do [again]. How old am I? I think I have earned my own responsibility here...& yet I am doomed to being treated as a child. I have told her, yet again, if she deems that she can do better, then do it yourself! Mind you, this is all over airport transfers, & I hung up. That's the last thing I need!
I have this odd feeling, as if I was talking in my sleep again. I want to call my girlfriend to see if I talked to her or not last night...I have a tendency to sleep walk, talk, or whatever you might call it...I just talk with a slight slur. It is pretty scary. I have done strange things...like bid on ebay...exchange money...online banking...take off my clothes...I assume it is because my body is so tired, but my mind is still racing around...trying to get things done...
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